Newspaper Article on my Biz and my Son
Posted by Jennifer Fiander at 2/5/2008 9:07 PM and is filed under Angelman Syndrome,about my special boy & experiences 
Hi everyone, thought I would post the link to an article that came out 2 weeks ago about my company, which started because of my sweet special boy. I've gotten many compliments on the article from people in our community.
Colin Farrell- if you're reading- call me. We've been mentioned in the same article
Colin Farrell- if you're reading- call me. We've been mentioned in the same article
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Lil' Angel Gifts raises awareness on both coasts Published in the Kings County Record Story & photos by Charlene MacKenzie Published Tuesday January 15th, 2008 HAMPTON - A local woman has taken what many would find a challenging situation and found a way to balance a successful career and a demanding family life. Jennifer Fiander is an energetic young mother with three children: seven-year-old Cameron, five-year-old Kennedy and Peyton, 18 months. She and renowned Irish actor Colin Farrell have something in common both are parents of children with Angelman Syndrome. Cameron has the rare genetic disorder, which was named after the doctor who discovered it, Harry Angelman. Children with the disorder are generally happy with sweet personalities, she explained. While they are developmentally delayed and have little or no use of words, they're easily excitable and frequently laugh and smile. To read entire article: ENTIRE ARTICLE |
Hey,
The doctors told us yesterday that our son has a chance of having Angelman's Syndrome.
He is nineteen months old, he doesn't talk, crawl, walk, but he does smile.
In January, he had surgery for Chiari One Malformation.
We thought that would help his symptoms. It has helped with his eating but now we'll wait and see if it is more of a genetic disorder.
We would love some comments and ideas about this syndrome and what we can expect.
Thanks!!
shaun
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Welcome Shaun! I emailed you privately, but I'll post this info for anyone else who is looking for more info on AS.
You can find resources and read more information on my website page: http://www.lilangelgifts.com/about%20us.html
If you have a child with Angelman Syndrome, I highly recommend getting on the AS listserv- the parents are "experts" and can answer pretty much anything you need to know. Here are the instructions for getting on the listserv:
To subscribe to, or unsubscribe from, the angelman-l list, please
go to: http://lists.ucsd.edu/mailman/listinfo/angelman-l
That's it. All the new subscriber has to do is click on the link above and follow the instructions.
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Hello,
I came across this website because I am immersing myself in everything angelman. Yesterday 2/19/2008 will always be a day to remember. Our son Logan is 5 years old and it has taken until now to get the angelman's diagnosis even know through research I knew that it was angelmans a couple of years ago. But with new chromosomal tests, it was diagnosed. Now I am reading anything and everything I can get my hands on. What is really funny is that when I read all of the Angelman traits THATS MY LOGAN. It has been 5 frustraiting years of no sleep, seizures and many floods (in the bathroom and from my eyes) we can move forward instead of having to say that no doctors knows what Logan has. Also, I just bought the bibs that you mentioned. WOW can they drool, and with a new med that he is on it just increased. I am so glad that there are other people out there with little 'angels" except I can't find any where I live (Iowa). I hope that I can make that different. Bless you and everyone else that has the privilage of raising an "angel".
Erin Miller
West Des Moines, Iowa
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