My Stint in Rehab...
Day 2 of 4 at the rehab center. I'm still shaking from being off the drugs for 3 days. I need my crack fix...
Oh, that was another rehab story 
You want to hear Cameron's:
You want to hear Cameron's: Day 2 of 4 at the rehab center. Little Cam got NO sleep last night, and has not fallen asleep yet today (early evening). He had a myoclonic seizure at lunch at Boston Pizza, which made us rush our meal, and made us very nervous. This is the 2nd myoclonic seizure I've seen him take, the 1st one my husband has seen. They are not the large convulsive type, so its not like we caused a scene (no one noticed), but he acted weird afterward. We paid early (while we were eating) and were prepared to run if we needed.
I hope he falls asleep soon.
Day 1 went very well at the physical rehabilitation center. He was fussy for activities today (day 2). Hopefully tomorrow will be better. It is interesting to see the bathroom modifications, and talk to OTs who ACTUALLY use modified bathrooms and know what they are talking about. I can picture our layout of our house a little better. I know, what house??? haha, someday...
We tried out a different type of walker today (a Rifton, right now we are using a pony walker). It looked promising. We need to motivate him with something highly motivating, to get him moving. Like, maybe having Shakira stand at the end of the hall. He'll be running to her in no time.
Cam's TA will be here for the next 2 days to learn and give input from school. The school/district had only allowed for one day until I called the woman in charge at the district. Now he will be here for BOTH days She gave in quickly. She's seen me in action before...
She gave in quickly. She's seen me in action before...The cafeteria had very scary looking oatmeal which kind of resembled gritty cement. I think it doubles as pothole filler. I avoided that. Although there are drawbacks to being here (no french fries- I HATE this healthy hospital stuff), there are some benefits to this place- like a washer that will dry my clothes. (what the- ??!?!?!?) I know I said I was looking forward to no housework for 4 days, but I can't wait to do laundry and try it out. I'm also loving that heat is free, so I've had the heat cranked for 2 days. My husband is whining because his skin has been sucked dry of all moisture, and my lips are dry and cracked. But I'm warm, so that is all that matters. We may go back home looking like raisins.
OT just dropped off a measuring tape. I'm off to measure the space between the tub and toilet. Oh, what fun!
Hi Jennifer,
just read your rehab entry for cameron.
My daughter Megan is seven and was diagnosed with a seizure disorder when she was eight months old. She started with grand mal seizures every two months, but, has got worse as time has gone on. She has five medications and suffers with every kind of seizure possible, its not unusual for her to suffer 30-50 seizures of various kinds a day.
She is really happy, bright and active, she too has myclonic 'spasms'. self-resolving and lasting between 10 seconds to two minutes, she has been having them for four years. If you want to chat, find out how we deal with them or ask questions, please ask. Good luck, Laura.
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