I haven't written for awhile. I keep trying to commit the time to keeping the blog current, but sometimes life gets in the way.

Cameron (my almost 9 yr old with Angelman Syndrome) has now officially been on the ketogenic diet for a few weeks. I mentioned in an earlier post that we are hoping to control some of the seizures that we don't see (with the diet) and to hopefully start to wean him off at least one seizure medication.

Learning about the diet in our case was fairly easy. Because Cameron has a feeding tube, it takes most of the hard work out of it. We don't have to deal with the discipline issues of keeping him away from certain foods. The dietitian carefully calculated out his formula requirements for him, so that takes the hard part out of that. I find it ironic that our original dietitian tried to talk us out of trying it, partially because of how much work was involved. (what work?)

The first week or so after coming home from the children's hospital, Cameron was pretty lethargic. We have no idea if that was diet related (although I'm told it can be) because he does that from time to time anyway. Then he got cranky. That wasn't pleasant. He got downright, inconsolable cranky for several days. Again, I have no idea what that was about. (Which is what I hate most about having a non-verbal child- how he can't explain to me what is wrong).

The past few days, Cameron has been a sweet, lovable, extremely happy little guy. To the extreme. I'm loving it. The funny thing is, he seems to be quite clear minded (not noticing any new skills yet though). He's looking around, taking everything in. However, we're pretty sure he's got quite a bit of little seizure stuff going on. I don't know if I can just see it more because his eyes seem so "clear" otherwise? We think we're seeing the return of drop seizures, and lots of little blinks and flutteries going on- just something "different" with his eyes. But his mood is fantastic. So, I'm trying not to panic. I'm optimistic that this will all work out in the end and that he will adjust to the diet and do well.  I'll keep you posted!