Thinking about my son's upcoming medical care during Haiti's crisis
My little man will be undergoing surgery in a few days. Not major surgery- he just needs to have his feeding button upsized as the smaller button I had to put in in December keeps clogging every time I give him his meds.
I think about how fortunate we are that we have access to the IWK, the children's hospital for Atlantic Canada. Sure, its still over 4 hours for me to drive there. I'll be tense the whole way there. And, I'm nervous about signing the consent papers. And handing him over. I'll likely cry like I do every time I have to hand him over for surgery. I worry about complications from seizures, and I worry that he just doesn't understand what is going on, and it breaks my heart.
But, the IWK is an amazing place, and we are incredibly fortunate to have the hospital as a resource, and I know he is getting the best care he can there.
Still... I think about the children and adults who survived the earthquake in Haiti, or those in other parts of the world right now who are suffering. Those who don't have access to medicine. We're almost "spoiled" in a way here with our anesthesia and our painkillers, and our specialists & surgeons. All things that we take for granted, because we have always had access to them. My heart breaks for the little children and adults who don't have a hospital to go to, and medications to help them cope with the pain. I will be praying for them.
I think about how fortunate we are that we have access to the IWK, the children's hospital for Atlantic Canada. Sure, its still over 4 hours for me to drive there. I'll be tense the whole way there. And, I'm nervous about signing the consent papers. And handing him over. I'll likely cry like I do every time I have to hand him over for surgery. I worry about complications from seizures, and I worry that he just doesn't understand what is going on, and it breaks my heart.
But, the IWK is an amazing place, and we are incredibly fortunate to have the hospital as a resource, and I know he is getting the best care he can there.
Still... I think about the children and adults who survived the earthquake in Haiti, or those in other parts of the world right now who are suffering. Those who don't have access to medicine. We're almost "spoiled" in a way here with our anesthesia and our painkillers, and our specialists & surgeons. All things that we take for granted, because we have always had access to them. My heart breaks for the little children and adults who don't have a hospital to go to, and medications to help them cope with the pain. I will be praying for them.


Wishing for the very best, for both Cameron and you, Jennifer, with the upcoming stress of surgery. I will be thinking positive thoughts.
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I'm so glad you write these posts, selfishly because you so clearly reflect the issues a special needs mom faces with her time, energy and focus.
Thank you and best of all possibly best outcomes for everything!
Kim
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You are so right about us being almost spoiled here. It's so easy to take our healthcare for granted.
Hope all went well with the surgery (hugs)
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Hi, stopping by from Twitter moms. I saw that you also have a special needs child blog. Maybe we can follow each other as I also have a special needs blog?- http://kaitlynnsplace.blogspot.com/
I hope everything goes okay with the upsize. My daughter is officially undiagnosed, but the docs think she has mitochondrial disease. However, when we were first starting to look for a dx, I thought she might have angelman syndrome....because she loves loves loves the water. Anyway, I'm rambling-
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