Special Needs Reads: Recent Comments

Comment on Newspaper Article on my Biz and my Son

Erin Miller — Wed, 20 Feb 2008 18:57:30 GMT

Hello,

I came across this website because I am immersing myself in everything angelman. Yesterday 2/19/2008 will always be a day to remember. Our son Logan is 5 years old and it has taken until now to get the angelman's diagnosis even know through research I knew that it was angelmans a couple of years ago. But with new chromosomal tests, it was diagnosed. Now I am reading anything and everything I can get my hands on. What is really funny is that when I read all of the Angelman traits THATS MY LOGAN. It has been 5 frustraiting years of no sleep, seizures and many floods (in the bathroom and from my eyes) we can move forward instead of having to say that no doctors knows what Logan has. Also, I just bought the bibs that you mentioned. WOW can they drool, and with a new med that he is on it just increased. I am so glad that there are other people out there with little 'angels" except I can't find any where I live (Iowa). I hope that I can make that different. Bless you and everyone else that has the privilage of raising an "angel".

Erin Miller
West Des Moines, Iowa

Comment on Newspaper Article on my Biz and my Son

Jennifer Fiander — Wed, 06 Feb 2008 17:42:01 GMT

Welcome Shaun! I emailed you privately, but I'll post this info for anyone else who is looking for more info on AS.
You can find resources and read more information on my website page: http://www.lilangelgifts.com/about%20us.html

If you have a child with Angelman Syndrome, I highly recommend getting on the AS listserv- the parents are "experts" and can answer pretty much anything you need to know. Here are the instructions for getting on the listserv:

To subscribe to, or unsubscribe from, the angelman-l list, please
go to: http://lists.ucsd.edu/mailman/listinfo/angelman-l

That's it. All the new subscriber has to do is click on the link above and follow the instructions.

Comment on Newspaper Article on my Biz and my Son

Shaun Hunt — Wed, 06 Feb 2008 14:35:54 GMT

Hey,
The doctors told us yesterday that our son has a chance of having Angelman's Syndrome.
He is nineteen months old, he doesn't talk, crawl, walk, but he does smile.
In January, he had surgery for Chiari One Malformation.
We thought that would help his symptoms. It has helped with his eating but now we'll wait and see if it is more of a genetic disorder.
We would love some comments and ideas about this syndrome and what we can expect.
Thanks!!
shaun

Comment on "Don't Quit" - a poem to keep you going when things are tough

Donna & Miss Emma — Fri, 14 Dec 2007 22:16:45 GMT

We will be sharing this with Miss Emma's daddy. Thank you.

http://ourangelemma.blogspot.com/

Comment on Medical Students Coming for a Home Visit Again & a tip for TEACHERS

steph and brady — Mon, 10 Dec 2007 06:42:29 GMT

Wow,that is so cool about the med students,im envious!! I wish that we had an opportunity like that here.
Anyways I got your link from Bradys blog and wanted to drop in and say thank you so much for the heartwarming comment that you posted. Its so nice to see others that realise the true blessing that our little Angels are! Thanks again.

Comment on A Great Thing for my Small Business AND Raising Awareness for my Son's Disorder!

Donna Young — Sun, 28 Oct 2007 22:17:53 GMT

Go for it Jennifer. It may be just the door you needed to open to promote your new business with the least amount of expense required. Good luck! We will all be biting at the bit so to say to hear how this turns out for you.

Comment on Story I Wrote for My Son When He Started Kindergarten, to Prep His Classmates

Donna Young — Sun, 28 Oct 2007 22:18:25 GMT

Jennifer, I just finished listening to your pod cast and reading through your website of Cameron. I merely wanted to say thank you for sharing your Remnant Book idea as well as the brochure to share with others. You truly are a "mompreneur" and I wanted to confirm this personally. Angel hugs to Cameron from my granddaughter Miss Emma. Keep up the great work and continue to share your pod casts with the angel families.

Comment on The Dreaded Haircut...

Jennifer — Tue, 23 Oct 2007 17:09:31 GMT

Well, the haircut went ok! My hubby did most of it (he buzzed it off- kind of short, but too late now). I only had to do trim work around the edges. I think he enjoys the buzzing of the cutters, lol